Biological Data: The Latest Entrant in Privacy Protection (2025)

Biological Data: The Latest Entrant in Privacy Protection (1)

Aditi Pangotra

Research Analyst, Policy & Advocacy,CyberPeace

Biological data includes biometric information such as fingerprints, facial recognition, DNA sequences, and behavioral traits. Genetic data can be extracted from an individual’s remains long after their death and can continue to identify both that individual and an expanding pool of their living relatives. This persistent identification can significantly reduce privacy over time, revealing genetic characteristics and familial relationships across successive generations.

Key Developments in Privacy Protection for Biological Data:

Legal texts have been created relating to personal data protection and privacy broadly, and can sometimes prove to be poor adaptations specifically for ‘biometric data’ and its safety. Some examples are mentioned below:

  1. EU and UK- GDPR

GDPR focuses primarily on biometrics in Biological Data while deciphering the technology's immense potential. The EU describes “personal data” under the General Data Protection Regulation (GDPR) including any identifiable information about a particular person. For example, this can include names, identification numbers, location data, and other structured and unstructured data. In addition, the GDPR has more specific requirements around processing sensitive or “special categories of personal data.” These “special categories” include things like genetic and biometric data. For biometric security to work well, citizens' rights must be protected appropriately, and the data collected by private and public concerns must be managed carefully and sensibly.

  1. USA

California Consumer Privacy Act (CCPA) grants Californian consumers the right to protect their personal information and biometric data including the right to disclosure or access, the right to be forgotten, and data portability. The sale of personal information and the option of opt-out is also given to consumers. Additionally, it contains the right to take legal action, with penalties imposed for violations.

The California Privacy Rights Act was passed on November 3, 2020, and took effect on January 1, 2023, with a lookback period starting January 1, 2022. It introduces sensitive personal information which includes biometric data and other sensitive details.

Virginia's Consumer Data Protection Act, effective from January 1, 2023, designates genetic and biometric data as sensitive data that must be protected.

Illinois' Biometric Information Privacy Act is recognised as the most robust biometric privacy law in the United States. The significance of the Rosenbach v. Six Flags case lies in the Illinois Supreme Court's ruling that a plaintiff does not need to demonstrate additional harm to impose penalties on a BIPA violator. A mere loss of statutory biometric privacy rights is sufficient to warrant penalties.

  1. India

As per Rule 2(1)(b) of the SPDI Rules, Sensitive Personal Data or Information, including biometric data is included under its meaning. The term ‘biometric data’ has not been defined in the Digital Personal Data Protection Act, 2023. The need for data privacy under the DPDP Act emerges only if such data is subsequently digitised under extraction and manipulation, including notice and consent requirements and penalties.

The Biotech-PRIDE (Promotion of Research and Innovation through Data Exchange) Guidelines of 2021 are aimed at fostering an exchange of information which would thereby enhance research and innovation among various research groups nationwide. These guidelines do not deal with the generation of biological data but are a mechanism to share and exchange information and knowledge generated according to existing laws, rules, regulations and norms of the country. They will ensure data-sharing benefits, maximise use, avoid duplication, maximise integration, ownership of information, better decision-making and equity of access

How is Biological Data vulnerable?

  • Biological data is often immutable, meaning it cannot be altered once compromised. Unlike other authentications that can be changed, compromised biometric data poses a permanent risk, making its protection paramount.
  • The use of facial recognition technology by law enforcement agencies and the creation of databases by the same also highlights the urgent need for stringent privacy protections.
  • Advances in technology, particularly AI and ML, make it easier to collect, analyse, and utilise biometric data by manipulating biometric data. This in turn is leading to new forms of identity theft and fraud that make it necessary to enhance security measures and ethical considerations to prevent abuse.
  • Cross-border data transfers raise serious privacy concerns, especially as countries have varying levels and standards of data protection.
  • Wearable health-related biometric devices lack the required privacy protections which ends up making the data they collect vulnerable to misuse and breaches.

Future Outlook

With the growing use of biological data, there is likely to be increased pressure on regulatory bodies to strengthen privacy protections. This necessitates a need for enhanced security measures to protect users' identities and further prevent any form of unauthorised access. Future developments should be aimed at including strict consent requirements, and enhanced data security measures, especially for wearable devices. A new legal framework specifically designed to address the challenges posed by biometric data would be welcome. Biological data protection is an emerging need in the digital environment that we live in today.

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PUBLISHED ON

Mar 10, 2025

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Biological Data: The Latest Entrant in Privacy Protection (2025)
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